Lydia is getting her money's worth out of the NHS!

Lydia took a turn for the worse today. She started de-saturating (stopping breathing) early this morning when taking her feed from a bottle. She went blue later when Helen was in giving her another bottle and needed resuscitating. She was very unstable when having her eyes tested later this morning and then went down hill following that. The cardiac team attended to her during the afternoon and took bloods, tested for meningitis, examined her heart situation, performed brain scans and did all the usual checks. She needed to go on some oxygen, so when I went in at 19:30 this evening they took the decision to move her to paediatric intensive care. She flat-lined a few times on the journey up to her new ward, but after 5 mins in her new environment seemed to come back to "normal". The consultant now looking after her thinks her symptoms may well just be caused by an infection, so they will be giving her a strong dose of antibiotics as a precautionary measure (which will also knock-out any MRSA in her body, but NOT on her skin). She has had her long-line drip in her leg for about 4.5 weeks, so this may well be a source of the infection, but they are reluctant to remove this as it is through this they administer the muscle relaxing drug that is relieving her aorta restriction! It's all inter-related! They will see how she goes over the next few hours, but they may well need to ventilate her if she gets worse. We need to wait for various test results, but at the moment they don't suspect meningitis. We thank God her brain and heart scans were normal and trust Him yet again for this next stage in the exciting journey He has planned for us. All this is likely to mean a delay in the heart surgery, but it's vital she is strong going into the operation. I hope to be reporting some more positive news again in the next few days. Will keep you posted, thanks again for being interested and bless you for thinking of us.....